5th International Caregivers’ Conference - Program


Day 1 - Tuesday, 08-28-2018, from 10:00 to 18:00
 Time  Content  Speaker
 10:00 - 10:15 Opening and first information about the conference  Hubert Soyer
Norbert Hödebeck-Stuntebeck
 10:15 - 11:00 Opening words Johannes Fuhrmann
Matthias Bühler, Regens Wagner
Burkhard Hielscher, Diakonische Stiftung Wittekindshof
Tony Holland, IPWSO
Inga Koenen, PWSA Germany
Michael Hübsch, Ministry of social affairs, Bavaria, Germany
 11:00 - 11:45 Lecture:  „Pam Eisen Lecture”:  Experiences and expectations of parents in the cooperation with caregivers and consultants (Psychologists, Pedagogues) Monika Fuhrmann
 11:45 - 12:15 Lecture: “New Country”:  Australia, Development and Visions Craig Moore, INTERACTION
 12:15 - 13:30 Lunch break
 13:30 - 13:45 Introduction to the workshops  Norbert Hödebeck-Stuntebeck
Hubert Soyer
 13:45 - 14:45 4 Presentations: Introductions to the topics of the four workshops Mary K. Ziccardi, Norbert Hödebeck-Stuntebeck, - Early intervention
James O´Brian - Self-determination
Leopold Curfs - Aging
Patrice Carroll - Friendship
Workshops 1 – 4 (first round) in parallel, including a break (15:00)
  1. Early intervention (from the psychological and pedagogical view)
  2. Aging in people with Prader-Willi Syndrome
  3. Friends, Partnership and Sexuality
  4. Self-determination - imperative condition and challenge in assistance
 Leaders of the workshops
  1. Constanze Lämmer, Norbert Hödebeck-Stuntebeck, Mary K. Ziccardi
  2. Lisbeth Moser, Jackie Mallow, Larry Genstil
  3. Patrice Carroll, Winfried Schillinger
  4. Svetlana Labun,  Hubert Soyer, Tony Holland, James O´Brian

Day 2 - Wednesday, 08-29-2018, from 9:00 to 23:00
 Time  Content  Speaker
 9:00 - 10:45 Workshops 1 - 4 (Continuing first round)
 Leaders of the workshops
 10:45 - 11:00 Break
 11:00 - 11:45 Lecture: Scientific and clinical overview on actual research
 Tony Holland
Dan Driscoll
 11:45 - 12:00 Lecture: Traumas in the development of people with PWS - first ideas
Mary K. Ziccardi
 12:00 - 13:30 Lunch break
 13:30 - 14:15 Round table discussion: Motivation Mary K. Ziccardi
Larry Genstil
Amalia Balart
 14:15 - 17:30 Workshops 1 – 4 (second round) in parallel, including a break
  1. Early intervention (from the psychological and pedagogical view)
  2. Aging in people with Prader-Willi Syndrome
  3. Friends, Partnership and Sexuality
  4. Self-determination - imperative condition and challenge in assistance
 Leaders of the workshops
  1. Norbert Hödebeck-Stuntebeck, Mary K. Ziccardi, Constanze Lämmer
  2. Lisbeth Moser, Jackie Mallow, Larry Genstil
  3. Patrice Carroll, Winfried Schillinger
  4. Svetlana Labun,  Hubert Soyer, Tony Holland, James O´Brian
 19:00 - 23:00 Conference party

Day 3 - Thursday, 08-30-2018, from 9:00 to 23:00
 Time  Content  Speaker
 9:00 - 10:45 Workshops 1 - 4 (Continuing second round)
 Leaders of the workshops
 10:45 - 11:00 Break
 11:00 - 12:00
 Lecture:  Diagnostic, as the basis for therapy and pedagogical and psychological treatments
 Norbert Hödebeck-Stuntebeck
Hubert Soyer
 12:00 - 13:30 Lunch break
 13:30 - 14:45 Open space: Presentation of the results of the workshops Leaders of the workshops
 14:45 - 15:00 Break
 15:00 - 15:45 Round Table Discussion: “Finding Solutions Together” IPWSO Board, PPCB, CSAB, FamCare, Parents
 15:45 - 16:15 Evaluation of the conference and perspectives
“Final Greetings”
 Hubert Soyer
Norbert Hödebeck-Stuntebeck